Fun barbecue in Hatfield to help Welham Green toddler
PUBLISHED: 10:37 14 August 2015 | UPDATED: 10:37 14 August 2015
A devoted mother has organised a family fun barbecue in Hatfield to help her desperately ill seven-year-old son.
Seven-year-old Kai Davis is unable to understand why he can’t play football with his friends - but his mother Kerrie Jones knows he is likely to be restricted to a wheelchair in a few years, and may not live beyond 20.
She told the Welwyn Hatfield Times: “He gets frustrated and upset when he sees his friends are running and he can’t.”
Kai was just four when he was diagnosed with Duchenne muscular dystrophy, an incurable lack of a key protein causing progressive weakness.
Thirty-year-old Kerrie, who lives in Churchill Crescent, Welham Green with Kai and his brother and sister, added: “Children (with the condition) are often in a wheelchair at the age of ten, and by their late teenage years are totally paralysed.
“Without expert medical care, my son will die in his late teens or early 20s.”
Kerrie hopes her event at The Harrier pub on Saturday will help her fund a hydrotherapy pool in a garden shed, which will cost about £2,500.
She said: “It would mean so much. It would give him a better quality of life.“
Not only would the pool help relax Kai’s muscles. but it could calm his mood when he gets frustrated and angry.
For £5, children attending the barbecue will get a toy, a burger or hotdog, and unlimited fun on a bouncy castle between 2pm and 5pm.
Other attractions will include face-painting, pony rides, and stalls selling Asian food, crepes, and furniture.
Kai’s father Kevin Davis, who lives in Hatfield, will be helping Kerrie run the event.
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